Hi, everyone! 
My friends here already know I have not been able to post here since Christmas or so, but many others may not have known.
I cannot think of a better way to put this, but I would like to say thank you to all of my friends here – you know who you all are. I will try to make it up to you one day when I can, but I think the only way I can do this so far is by carrying on being your friend and saying that I am always around if you want someone to talk to for any reason – fun or serious topics or even worries – but I will say this for now:
Thank you for you concern, your great e-mails and messages and your Christmas presents! It all means a great deal to me, and I cannot say how grateful I am. I do not wish to keep highlighting my health, but I can safely go to bed in a quite happy mood.
Many of the symptoms I have been through are ones I had hoped I would never experience again. Indeed, the last time I was so poorly was back in 2001. Mum and Dad have done a great job of looking after me again, so big thanks to Mum and Dad!
This may sound somewhat daft for a 28-year-old, but having friends here and elsewhere holds great excitement for me. Because of my condition, it takes a great deal of planning to go online and e-mail or chat. This message alone has taken me about three hours to ‘schedule’ – I just was not up to doing it earlier. I am quite a sociable person, though I never get to go out, so I relish online communications, although I do occasionally get to see local friends at home (but not very often!).
My condition does rule my life, for it affects such things as my movement, thought processes and even eating. The form I have is somewhat more severe and chronic that many others’, and I am in the 25% of sufferers that have a severe form. However, apart from my relapses, my condition could be even worse, so I try to think of myself as lucky to an extent. Despite all that, I do try to be as genuinely ‘normal’ as possible – whatever that is! hehe – and try to get on with tings without deliberately mentioning my condition every five minutes.. In any case, even those suffering from so-called mild or moderate ME, which I used to have, do not have particularly easy lives. Indeed, I know some have experienced discrimination and mocking because “they don’t look ill”.
If there is another thing I could say, it would be this: despite our so-called strange interest, at least many of do still have other interests and skills. I know some of you are pretty domesticated, which is often unheard of in men! I know one of my neighbours, an electrician, once said to me that you can never know too much about something… and why not, I say?
I am certainly not better yet, but I am not quite as bad as I was in. say, early January.
I will finish by saying that I hope to come back here more often soon and that I do miss you all.
Take care.
Regards,
Carl
My friends here already know I have not been able to post here since Christmas or so, but many others may not have known.
I cannot think of a better way to put this, but I would like to say thank you to all of my friends here – you know who you all are. I will try to make it up to you one day when I can, but I think the only way I can do this so far is by carrying on being your friend and saying that I am always around if you want someone to talk to for any reason – fun or serious topics or even worries – but I will say this for now:
Thank you for you concern, your great e-mails and messages and your Christmas presents!
It all means a great deal to me, and I cannot say how grateful I am. I do not wish to keep highlighting my health, but I can safely go to bed in a quite happy mood.Many of the symptoms I have been through are ones I had hoped I would never experience again. Indeed, the last time I was so poorly was back in 2001. Mum and Dad have done a great job of looking after me again, so big thanks to Mum and Dad!
This may sound somewhat daft for a 28-year-old, but having friends here and elsewhere holds great excitement for me. Because of my condition, it takes a great deal of planning to go online and e-mail or chat. This message alone has taken me about three hours to ‘schedule’ – I just was not up to doing it earlier. I am quite a sociable person, though I never get to go out, so I relish online communications, although I do occasionally get to see local friends at home (but not very often!).
My condition does rule my life, for it affects such things as my movement, thought processes and even eating. The form I have is somewhat more severe and chronic that many others’, and I am in the 25% of sufferers that have a severe form. However, apart from my relapses, my condition could be even worse, so I try to think of myself as lucky to an extent. Despite all that, I do try to be as genuinely ‘normal’ as possible – whatever that is! hehe – and try to get on with tings without deliberately mentioning my condition every five minutes.. In any case, even those suffering from so-called mild or moderate ME, which I used to have, do not have particularly easy lives. Indeed, I know some have experienced discrimination and mocking because “they don’t look ill”.
If there is another thing I could say, it would be this: despite our so-called strange interest, at least many of do still have other interests and skills. I know some of you are pretty domesticated, which is often unheard of in men! I know one of my neighbours, an electrician, once said to me that you can never know too much about something… and why not, I say?
I am certainly not better yet, but I am not quite as bad as I was in. say, early January.
I will finish by saying that I hope to come back here more often soon and that I do miss you all.
Take care.
Regards,
Carl
