Illness, Laundry, and Cleaning

[mrsalvo]

Thank-you John,
The only instructions I was given was the day of the treatments to empty two cups of bleach into the commode before voiding the solution, close the lid, let it sit for 15 minutes, then flush. Repeat up to 6 hours each time he needed to void. That was it, nothing written down for follow up cleaning.
My Dad has an adverse reaction to bleach, due to a former illness, so I bought Lysol thinking I was safe. All I did was smear that stuff all over the place, 2 days after treatments.

And tonight I'm not feeling well.

I'm furious.

 

[circlew]

Perhaps this will be of help in choosing cleaners. There are several Lysol products listed as tuberculoidal disinfectants. The EPA registration numbers are listed.

http://https//www.epa.gov/sites/production/files/2016-12/documents/list_b_tuberculocide.pdf

 

[friscosudz]

Bleach is simplest and least expensive

Bleach is still probably your least expensive and most effective option. Mix a solution of 1:10 (1 cup bleach to 10 cups water) and put it in a spray bottle. Wet everything of concern with the solution, and let it sit for 10 minutes. The surfaces need to stay wet during that time. After 10 minutes, you can rinse the bleach off (if necessary) and let the surface dry.

I'm a Registered Nurse who has spent the last 20 years working in Operating Rooms. This is the basic solution that we use to clean up blood spills and other bodily fluids. If mixed as directed, it is effective and safe. Just remember that you have to mix fresh solution every 24 hours, as bleach deactivates over time once mixed with other products.

If you want something pre-mixed and more convenient, I would recommend Clorox's professional line of products. They have both bleach-based and hydrogen peroxide based cleaners, both of which are effective against Mycobacterium tuberculosis and most other common pathogens, when used as directed. They come in different formats (sprays, liquids, and pre-saturated disposable cloths). Should be something there to meet your needs. You can order most of them off of Amazon or some on-line janitorial supply companies sell them as well. Here's a link to the Clorox Professional web page:

http://https//www.cloroxprofessional.com/products/

 

[johnrk]

Friscosudz

Thanks for your posting! You sound like the one who would know.

I love bleach. Vegetarians have used bleach for a century to clean our fresh greens. I still use bleach in my toilets. In fact, along with white vinegar I use it for just about everything but laundry!

 

[mrsalvo]

I've finally calmed down, took a while.

First, thanks everyone for your posts. They've been most informative. Had no idea bleach can deactivate. I'm letting it set for a while after spraying before wiping it down, that was new to me also.

Second, I recleaned everything with bleach after getting off the phone with Kimberly from Lysol. Their packaging is misleading, absolutely. Also, I'm turning over the air everyday in his bathroom and bedroom, and the house. With the Lysol, all I did was smear the virus everywhere, thank heaven I wear a face mask and disposable gloves when going in there and handling his dirty laundry.

Third, someone dropped the ball...at the Dr's office. To start a treatment like this without being given a recommendation sheet for care and cleaning is, in my opinion, neglect, esp. after being told by the Dr. to be extremely careful going into his bathroom and bedroom, and to stay away from children, other seniors, and anyone with a compromised immune system. (Another Dr., in another field, told me to wear a face mask when going grocery shopping, or in the public.)

After we get through these treatments and he has a final bladder check, I'm finding him a new Dr. and we aren't going back there. I'm not above or below letting a Dr. go. I'll bet a few on this forum has released a Dr. of their services.

Lastly, I'm grateful that the treatments took this past summer and his bladder is looking good. In all honesty though, I'd have to think twice before I would recommend this type of treatment to anyone, given the restrictions and other people that live in the household (which is just myself).

I'm just dealing with it, and that's about all I can do right now. We have 4 more treatments (weeks) scheduled, providing he doesn't come down with a UTI on any given week (which we did last summer and delayed everything).

Thanks again.
Barry

 

[johnrk]

Barry

I keep reading your postings with interest. So very many children would just desert their parents--believe me, I've seen it more than most in my line of work.

Whoever your greedy, sloppy physician is, the sad part is that the creep will keep on enriching himself on other innocent patients.

Bleach is just such an amazing thing. It's so simple, it's so inexpensive, and it's so thorough. Me, I like the odor of regular old bleach, just as I like the odor of regular ammonia. And bleach leaves things smelling clean.

Please keep us informed on your father's status. I think about him down here in Brazosport, south of Houston.

John Richard

 

[dixan]

This is cancer. Do what your doctor say and hope it will not reappear. BCG gives good results in some cases of bladder cancer.

My father had several TURBT in 2016 (no BCG treatments) and after all, the cancer spread to the prostate. His bladder and prostate were removed in March 2017 - he has now two urostomies. In the hospital they infected his kidneys with enterococcus faecalis/faecium, resistant to everything but vancomycin. His condition was horrible - acute kidney failure. They cured the kidneys. Then he had radiotherapy. No chemo, because lymph nodes were negative.
He is now OK and still working. He is 72. I pray the monster will not reappear.

Barry, I hope your dad will be OK in the future. Best wishes!

 

[mrsalvo]

Am resurrecting this thread for the final time.
Again, thank-you all for the valuable information concerning cleaning products and experience. I am forwarding the list from the EPA concerning cleaning solutions that fight the TB virus to the doctors office, thank you Tom for posting that information.

I'm still shell shocked by what Kimberly, from Lysol, informed me when we spoke, that NOTHING they sell over the counter combats the virus. Something is amiss here, given the EPA list.

The Dr's office SHOULD have been required to tell the caregivers, anyone who would be sharing the living quarters, & patients what was effective in cleaning, and general overall care in the house when treatments started. This would also include keeping the air turned over in the bathroom and house, on, and after the day of treatments. I honestly believe, with little doubt, that stuff gets airborne even from voiding out in the toilet, from my own experience. (I was vaccinated as a child for TB, and it still made me sick to a point I had to confine myself to bed and rest up. This happened nearly weekly at the end of the first phase of treatments and about half of the treatments on the second phase.)
I genuinely feel sorry for any household of other patients where small children, and anyone with a compromised immune system would be exposed. This is a major concern I have with so many people coming into the country who have not been vaccinated and, with the TB virus becoming antibiotic resistant.

Laundry: I am over the whole F/L / T/L issue, completely, with this experience. If the medical community continues in the future treating cancer and other deadly microbes with TB or other hardy microbes, then maybe having a washer that heats water to 160 degrees might be preferable. My hot water heater was set to 125. I washed towels and underwear with bleach in hot water, some clothing and towels now have small holes in them but that's okay and can be replaced. Colored clothes in warm and I hung most everything outside on the clothesline for the sun to do its work. I never felt the clothes I washed in warm water were disinfected when I took them out of the washer. (My washer is T/L SQ.)

Today we finished up the treatments and my Dad is doing pretty good now. I've managed to get him to gain some badly needed weight, hey, we are up to 119 lbs now. He is weak but is steadily gaining his strength back. The cancer appears to have been beaten, and I could not ask for a better outlook. He still has his bladder. It has been a LONG and HARD 8 months. Looking forward to the Holiday Season now with no more treatments.

My best to you all.
Barry

 

[johnrk]

Barry

Sounds like good news for you and your father. Nothing is better for the holidays than to have loved ones with you. Best wishes-